Laura King Edwards, "Run to the Light"
Laura King Edwards, Run to the Light
Saturday, January 5, 2pm
Laura has it all: a great job, a loving family, a new husband, and a house in her hometown, where she can watch her sister, Taylor, grow up. But one month after her wedding, Laura and her family receive shocking news: Taylor has Batten disease. A rare, fatal disease that will cause Taylor to go blind, suffer seizures, and lose the ability to walk and talk. There is no cure. Laura thought she’d get to watch her baby sister grow up, but instead she’ll have to watch her die.
Unwilling to take no cure for an answer, Laura founds a charity with family and friends, Taylor’s Tale, to save children with the disease. Meanwhile, Taylor starts running, completing her first race blind. Inspired, Laura, a lifelong runner, begins running in half marathons to raise money and awareness. And also to run away from the pain.
Taylor’s Tale becomes a world leader in the fight against Batten disease, but not quickly enough to save Taylor. Stripped of her faith, Laura falls into a dark despair. But Taylor’s unwavering courage in the face of certain death gives Laura a renewed sense of purpose to turn her family’s tragedy into an opportunity–to ensure others won’t have to suffer as her sister has suffered.
Run to the Light is Laura’s inspiring account of how she found the courage to face indescribable loss, and of what it means to really believe.
Laura King Edwards is a writer, rare disease advocate and marketing professional.
Laura’s younger sister was diagnosed with a rare, fatal brain disorder called Batten disease in 2006. Refusing to accept the status quo, Laura became a passionate activist, co-founding a nonprofit organization, Taylor’s Tale, at age 24.
Taylor’s Tale became a top supporter of infantile Batten disease research and today is known worldwide for its contributions to science, awareness and advocacy on behalf of the estimated one in 10 Americans with a rare disease. Laura serves as the charity’s vice president and writes the blog.
A graduate of the University of North Carolina at Chapel Hill with a BA in English, Laura minored in creative writing (winning the William H. Hooks award for creative writing) and has wanted to be an author since she penned her first story before starting kindergarten. Writing is in her blood; Laura is a cousin of the late Reynolds Price, an American poet, novelist, dramatist, essayist and James B. Duke Professor of English at Duke University. Samuel Clemens, better known as Mark Twain, is on her family tree.